Authors: Erin Linnenbringer; Briana Wilson; Kayla Wallace; Anjali Kunavarapu; Charles Cogshell; Bailey Martin-Giacalone; Meera Muthukrishnan; Brett Maricque; Jessica Mozersky; Bettina Drake; Joyce Balls-Berry
This study aimed to improve access to cancer genetic services for Black or African American patients, who often receive less care than their White counterparts. Using a community and patient engagement approach, researchers held eight community cafés from January to May 2024, gathering feedback from 121 community members, many of whom had cancer or a family history of it. Participants discussed the importance of clear communication about genetic research and the role of community health workers (CHWs) in building trust. They emphasized the need for more representation of Black individuals in research and clinical teams. The cafés were successful in generating valuable insights for creating community-focused interventions to address these disparities.
Link: Engaging Black and African American community members to develop culturally appropriate methods for cancer genetics education, risk assessment, and referral to research studies and clinical services: A community café approach
Resource Topic: cancer
Resource Type: Qualitative
Year: 2024
Region:
Country: United States of America
Publisher May Restrict Access: Yes
